Day 1
Joey is in great pain and cried for the first time. I had c-section (less than 1 hour surgery) twice before and know how it hurt. It's hard to see him suffer. He sit up, stood a little bit and sat on chair today. We massaged him, especially the bottom and back. He sweat a lot.
Day 2
He moved more today. He could roll over more easily.
Day 3Day 2
He moved more today. He could roll over more easily.
He walks, stands by himself and can play some games. He walks out of the room. He had the first bow movement today. Joey is pampered with gifts. Thank you, my friends, for sending in gifts and love!
He walked in the hallway by himself. Feeding tube was removed. He sipped liquid. Fat and protein are given through port. Doctors call him superhero. If everything is normal tomorrow, he can be out in 3 days.
We had a long talk with oncologist about treatment plan. Joey needs a pet scan in one week. His tumor spread from kidney to the neck and the images show some small tumors possible in the chest. Before a second surgery, he will start taking pill. 6-8 weeks after taking the pill, he needs another scan to see how his body reacts with pill.
Day 5-7
Joey started regular food and walked to the playroom upstairs. He didn't complain any pain. We are ready to go home. Doctor says he can go to school and wait for 2 more weeks for sports.
Day 5-7
Joey started regular food and walked to the playroom upstairs. He didn't complain any pain. We are ready to go home. Doctor says he can go to school and wait for 2 more weeks for sports.
Joey: you are so brave. Hope you can recover very quickly.
ReplyDeleteAunt Qingcha
Christian Collins and family are praying for you. Joey is a strong fighter and all that healthy food he has had for years will help him recover. You can share with Joey that his friend Christian did have cancer. Not the same, but in his blood, aml leukemia. He was almost two years old. His treatments lasted two years and by the time he moved to Florida and went to school to meet his friends he was better. This summer he was five years better. www.caringbridge.org/ga/christiannicholas
ReplyDeleteThank you, Denise. I didn't know Christian is fighting cancer. I shared that with Joey. What a strong mom you are! Christian is a happy boy.
DeleteKathy
Joey:
ReplyDeleteHang tough. The goal is to get past each difficult moment, one by one. All the surgery and pain will become a distant but proud memory when you are strong and well again--and running with glee like in your cheerful photo!
My prayer for you:
Oh, God: guide me, protect me, make of me a shining lamp a brilliant star. Thou art the Mighty and the Powerful.
HI! My friend, Denise told me about your story and blog. We knew each other when she lived here... anyway, I have two boys with rare diseases and we spend quite a bit of time in Cincy (we don't go back until June this year) -- I have friends in the area, as we have been going to CCHMC since 2006. Please feel free to contact me if you have any questions! Child Life there is great and if you go to guest services, you and family members can get free tickets for things in the area. I will be praying for your son and your family. We love CCHMC..... we've been to children's hospitals all over the country for various surgeries and procedures and CCHMC really is the BEST! You are in good hands there!
ReplyDeleteThank you, Pattie. We like here too. People are very friendly and food is good too. I will pray for your two boys and Christian. I pray that childhood cancer and rare disease can stop.
DeleteKathy
Joey, you are a true hero. I am so proud of you and your family. I know with all the spirits you have, you will make miracle. Go!
ReplyDeleteFen, you and Luke should take care as well. We are all here with you. Meggie
I am so happy to hear the great progress Joey is making in his recovery. We look forward to seeing him home again.
ReplyDeleteJen, Dan, Ben, and Lily
I am happy to hear that Joey is doing so well. I spent most of my childhood in the hospital due to a rare birth defect and can understand what he is going through. From personal experience I can tell you that kids are fighters and so much more resilient than adults give them credit for. I know he's getting the best care possible and I'm sending my positive thoughts to him. Hugs
ReplyDeleteI am Xin Guan,and use to study in Dr Jian Li's Lab some time. I just hope Joey to have a healthy life.
ReplyDeleteJoey, you are the best. Fight the cancer for everyone who love you.
ReplyDeleteDear Joey, you are the superhero! We pray that God give the doctors wisdoms to develop the right treatment plan for you and the tumor will stop spreading with HIS power. We're looking forward to your coming back to our Chinese singing class. Hugs. ---Alice
ReplyDeleteDear Joey, You're such a brave boy! We send our best wishes to you and we wait for your coming back to join our singing class in Chinese school. Alice
ReplyDeleteI'm so happy that Joey is going to come home soon and is feeling more comfortable!
ReplyDeleteEmily
So happy to see this... See you in Chinese school!
ReplyDeleteRichard and Charles
That's the Joey we know and love!!!!! Nothings going to hold him back for very long. Madison says to tell Joey hello!!
ReplyDeleteBest wishes
Rona and Madison
Dear Joey, you are a true superhero!! We pray for you every day. We are waiting for more and more good news from you! --your friend and secret admirer from bighandsmallhand. :-)
ReplyDeleteHi Joey, Good luck, and do your best! You are very brave to go through so much hardship and surgery. Like Lance Armstrong said;
ReplyDeleteGive up, or fight like hell. (Don't read that out loud, in case your parents don't like you swearing, but it's true.) And I'm sure everyone would rather you choose the second choice! :) H.A.G.S.! Again, good luck! XiLin